Safety At Home

Use your good judgment:

• If you feel weak or unsteady, let someone else change the light bulbs. Skip the shower, and opt for sponge baths.
• If you live alone and feel very weak, ask someone to check in on you.
• Do what you can to avoid falls. Put away throw rugs. Keep walkways and stairs clear. Clean up spills promptly. Don’t wax floors.
• In the event of a power outage, keep a flashlight handy. Also keep a working telephone available.
• Pay attention to the expiration dates of your medication. Throw out old medications.

Unless otherwise stated, the information provided here is of a general nature, composed by non-medical personnel. It is meant to be accurate and helpful advice for MG patients. It is not intended to be medical opinion, nor is it a substitute for personal professional medical care.

Physiotherapy treatment of Myasthenia Gravis

Build and maintain your muscular strength
Utilise warm up effects to reduce the impact of Myasthenia Gravis
Develop strategies for effective management of your condition specific to your individual needs
Decrease your risk of falling
Enhance your ability to function daily
initial appointment will involve an assessment with to review current mobility, movement that at each of joints, coordination, balance and strength. physio will also assess your capabilities with functional tasks like walking, standing, sitting and lying and how you cope manoeuvring into each position. The outcome of this initial review will then be discussed between you and your physiotherapist and some main goals will be set for you. You will then follow a programme of clinic or home treatment with your physiotherapist along with some home activities to help with your progression. The activities you complete with your physiotherapist may focus on:


Muscle strengthening
Joint flexibility / range
Completion of functional tasks and maintenance of independence
Balance
Smoothness and coordination of activities


Dr.Avinash Saini

REST

"COME TO ME, ALL YE THAT LABOR AND ARE HEAVY LADEN, AND I WILL GIVE YOU REST. TAKE MY YOKE UPON YOU, AND LEARN OF ME.....AND YE SHALL FIND REST UNTO YOUR SOULS" (MATTHEW 11:28,29)

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PLASMAPHERESIS

Myasthenia gravis (MG) is an autoimmune disease. Under normal circumstances, the body’s immune system protects against infection from invading bacteria and viruses. In MG, the immune system produces antibodies that become overactive and cause undesirable effects. These antibodies, called acetylcholine receptor antibodies (AChR), destroy or block certain receptor sites, resulting in muscle weakness. During plasmapheresis (also called  plasma exchange), these abnormal antibodies are removed from the bloodstream.



Plasmapheresis is a procedure in which blood is separated into cells and plasma (liquid). The plasma is removed and replaced with fresh frozen plasma, a blood product called albumin
and/or a plasma substitute. The procedure is often referred to as plasma exchange.

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WISHING MY TWINS GIRLS A HAPPY 29TH BIRTHDAY!

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Genes related to myasthenia gravis

Researchers believe that variations in particular genes may increase the risk of myasthenia gravis, but the identity of these genes is unknown. Many factors likely contribute to the risk of developing this complex disorder.
Myasthenia gravis is an autoimmune disorder, which occurs when the immune system malfunctions and attacks the body's own tissues and organs. In myasthenia gravis, the immune system disrupts the transmission of nerve impulses to muscles by producing a protein called an antibody that attaches (binds) to proteins important for nerve signal transmission. Antibodies normally bind to specific foreign particles and germs, marking them for destruction, but the antibody in myasthenia gravis attacks a normal human protein. In most affected individuals, the antibody targets a protein called acetylcholine receptor (AChR); in others, the antibodies attack a related protein called muscle-specific kinase (MuSK). In both cases, the abnormal antibodies lead to a reduction of available AChR.
The AChR protein is critical for signaling between nerve and muscle cells, which is necessary for movement. In myasthenia gravis, because of the abnormal immune response, less AChR is present, which reduces signaling between nerve and muscle cells. These signaling abnormalities lead to decreased muscle movement and the muscle weakness characteristic of this condition.
It is unclear why the immune system malfunctions in people with myasthenia gravis. About 75 percent of affected individuals have an abnormally large and overactive thymus, which is a gland located behind the breastbone that plays an important role in the immune system. The thymus sometimes develops tumors (thymomas) that are usually noncancerous (benign). However, the relationship between the thymus problems and the specific immune system malfunction that occurs in myasthenia gravis is not well understood.
People with myasthenia gravis are at increased risk of developing other autoimmune disorders, including autoimmune thyroid disease and systemic lupus erythematosus. Gene variations that affect immune system function likely affect the risk of developing myasthenia gravis and other autoimmune disorders.
Some families are affected by an inherited disorder with symptoms similar to those of myasthenia gravis, but in which antibodies to the AChR or MuSK proteins are not present. This condition, which is not an autoimmune disorder, is called congenital myasthenic syndrome

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Watch Your Meds

Medication errors are rising-but these simple steps can help keep you safe
 BY BETH HOWARD
Changes at Discharge :

PREVENTION: When you leave the hospital, ask how your drug regimen is changing and why you're receiving any new medicines, Unroe advises. And be sure to take your discharge papers- including your new drug list-to your next appointment with your primary care physician. _
 




 Be Drug-Savvy:

• Know every medication you take and why you take it-a surprising number of
people don't, says pharmacy specialist Todd Semla, Pharm.D.
• Buy your drugs from a single pharmacy. Most have computer programs that
catch potentially dangerous drug interactions, which can result when you get
prescriptions from different doctors.
• Develop an ongoing relationship with an individual pharmacist who will look
out for your safety. Start by scheduling a "brown bag" appointment, to which
you bring every over-the-counter and prescription medicine you take. This helps
identify negative side effects and any overlapping therapies. -B.H.

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“I have returned to my hometown of Charleston to promote and advocate my long-standing commitment to the youth”. The foundation addresses the needs of today’s youth by developing enrichment programs designed to build self-esteem, promote education, increase fitness and health awareness, as well as foster young leaders to be productive in the community.

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With one of the beautiful modeling volunteers

Watch your Meds.

Medication errors are rising-but these simple steps can help keep you safe
 BY BETH HOWARD

 Hospital Admission Errors:

 PREVENTION: Prepare a detailed list of prescription drugs-including doses, as well as any over-the-counter medications and herbal supplements you regularly take-and keep it with you at all times. ''You never leave home. without your driver's license and insurance card," Gleason says. ''Your medication list is just as important."
(You can keep track of all your prescription and over-the-counter medications with the AARP Health Record at aarp.org/healthrecord.)

Watch Your Meds

Medication errors are rising-but these simple steps can help keep you safe 
BY BETH HOWARD

 Swamped Stores:

PREVENTION: Fill your prescriptions when the pharmacy isn't at its busiest,Conry advises. "Ask the pharmacy what the best time is," she says. Or use the drugstore's automated refill system, allowing the staff plenty of time to process your prescription. And try to avoid filling a prescription the first week of the month. Deaths due to medication errors rise 25 percent above normal early in the month, researchers at the University of California at San Diego found. Study author David P. Phillips, Ph.D., a UCSD sociologist, believes this is because people tend to fill their prescriptions not long after receiving Social Security and other government-assistance checks, and the sheer number of prescriptions filled then is greatest.

Watch Your Meds

Medication errors are rising-but these simple steps can help keep you safe 
BY BETH HOWARD

Pharmacy Foul-ups:

PREVENTION: One review of prescription  of errors found that 89 percent of reported mistakes were discovered during medication counseling offered at the drug counter and were corrected before patients left the store. So don't waive your right to such counseling, Conry says. Instead take the time to review your prescription with the pharmacist, look at the dosage and confirm that this is what you discussed with your doctor especially if it's a new prescription. If you're refilling a prescription, open the container before you leave the store and make sure it's the same pill you usually take. Medications can differ from refill to refill; the pharmacy may have switched to a generic that is a different color or shape but contains the same active ingredient. ''You have a right to ask the pharmacist if it's the right drug for your condition," says Frank Federico, RPh., vice chair of the National Coordinating Council for Medication Error Reporting and Prevention, an independent body of  nearly 30 member organizations that promotes the reporting and prevention of medication errors.

Intravenous Immune Globulin (IVIG)

With IVIG, a patient receives high dose immune globulin intravenously. Immune globulin is a human blood product pooled from multiple donors who are carefully screened. By providing the body with normal antibodies from donated blood, IVIG treatments appear to temporarily modify the immune system. For most individuals, MG weakness typically improves within a week of treatment and lasts for several weeks or months. IVIG treatments are very expensive and offer short-term relief from MG symptoms.

Side effects—for instance, headache or allergic symptoms--are usually related to how fast the drug is administered.

Can Myasthenia gravis cause a sudden collapse?

Posted on July 3, 2012

In response. YES !!! YES !!! YES !!!
Sudden collapse is the most pronounced symptom of Myasthenia gravis. A severe case of Myasthenia gravis is marked by a sudden collapse due to extremely sudden weakness of all the muscles in the body, from the eyelids to the chest, to the arms, to the body, to the legs. Such extreme sudden weakness will cause total muscular collapse every 20 minutes.
It takes about 8 to 10 minutes to drive from San Bruno, California, to the San Francisco International Airport. Someone with Myasthenia gravis has enough strength only to drive to the airport but will not be able to drive back to San Bruno. One has to rest in the car on the side of the road for at least 15 minutes for the muscle strength to recover.
Walking in a shopping mall is very frightening for someone with Myasthenia gravis because every 15 to 20 minutes the person will feel that he or she is going to collapse completely onto the floor. The person cannot even shuffle his or her way along. The distance between the seats in a shapping mall are too far apart for anyone with Myasthenia gravis to even reach by walking.

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My display for a fashion show and vendor affair. My daughter is the saleswoman.