I Have pain

Myasthenia gravis and back pain between shoulder blades

 As like others like my self I was treated for a thymoma on my thymus.
The location of the thymus gland and thus the thymoma is in the middle of the chest right below the lungs behind the chest bone. That is why in the Myasthenia gravis operation, the surgeon has to literally saw the chestbone apart to get to the thymoma and put the chest bone back together again. It is an open chest bone sawing operation.
That location projected to the back is exactly between the shoulder blades.
This brings us to two situations: (1) pre-surgery Myasthenia gravis; and (2) post-surgery Myasthenia gravis.
(1) In pre-surgery Myasthenia gravis, the pain is due to the thymoma. (2) In post-surgery Myasthenia gravis, the pain is a phantom pain. However, due to the surgery, the healing of the cut wound of the chest bone will tighten the chest muscles and the shoulder blade muscles.

I read a description of Myasthenia Gravis as "Rag doll Illness" from my new twitter friend @mgaireland, Because of the muscle weakness associated with the illness. I thought it was very appropriate and I have adopted it as well. My personal description was wading thru the waters of live with a lead jacket on.
But how ever you decripe it ,this is How I live with MG.

THIS IS VIDEO FROM MY FASHION SHOW

Stephen "STATIC" Garrett

Stephen Garrett checked into Baptist Hospital East Feb. 25, 2008, and after a number of tests was diagnosed with a rare condition called myasthenia gravis, an autoimmune disorder with hallmark symptoms of muscle weakness and fatigue.Stephen Ellis Garrett (November 11, 1974 – February 25, 2008) also known as Static Major, was a Grammy Award-Winning American rapper, singer, songwriter and record producer from Louisville, Kentucky. He was a member of the R&B trio Playa. Static Major gained posthumous fame for appearing on Lil Wayne's 2008 album Tha Carter III on the song "Lollipop". Static Major was a producer of songs from several artists, including Aaliyah, Ginuwine, and Pretty Ricky.^] Static Major died suddenly on the operating table before Lil Wayne's Tha Carter III album was released.

Garrett died at Baptist Hospital East on Feb. 25, 2008. After a number of tests, he was diagnosed with a rare condition called myasthenia gravis, an autoimmune disorder with hallmark symptoms of muscle weakness and fatigue. Doctors recommended a procedure called plasmapheresis, a treatment similar to dialysis that removes toxins from the blood using an implanted catheter as a central line through the neck and into the chest area." A large bore catheter must be inserted into the patient's arm in order to perform this procedure. When a nurse was instructed to remove it, he went into respiratory distress and did not recover.

Difficulty Swallowing and Chewing

1. Avoid or Modify very Dry Foods
     - Breads, short breads and cookies
     - Use sauces, soups ,liquids to moisten


2. Modify food textures/ and consistencies
    - Chop meats to small pieces
    - Puree or blenderize foods
    - Chose softer foods

My Model Steffanie Miller

Model Marcus Maybank

THIS IS THE DAY OF MY JEWELRY AND ACCESSORY LINE UNVEILING 

Model Kimberly Mock

BACKSTAGE PHOTOS PRIOR TO SHOW TIME

Picture of the runway as seen by Our guest.

Nutritional Implications

• Difficulty Swallowing
• Difficulty Chewing
• Weak facial muscles
• Difficulty Breathing
• Drooping Head
• Fatigue