I was diagnosed March 13,2010 with Myasthenia Gravis, is a chronic autoimmune neuromuscular disease characterized by varying degrees of weakness of the skeletal (voluntary) muscles of the body.
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Showing posts with label How I Live with MG. Show all posts
Showing posts with label How I Live with MG. Show all posts
Monday, November 26, 2012
SOMETIME WE MUST ENCOURAGE OURSELVES
Hello friends time to share. Well most recently i have begun to encourage myself. I know what you are saying. Weren't you encouraging your self before today? Well the answer to that is yes. If encouraging myself is getting up every morning. Clothing myself,cooking and taking every opportunity to simulate the life I had prior to MG. Now I have adopted the practice of verbally encouraging my self out loud. I call myself by name and encourage my self to get up and complete a project after resting. Or I will tell my self I can do it. If maybe a little easier to do for me, since there is no one here to hear me talk to myself. It sounds a little off the wall I know. But It seems to keep me focused and directed. Because I love myself the encouraging push is soft and caring.....JUST A LITTLE SHARING.
Friday, October 26, 2012
Frozen Shoulder
I had been experiencing some shoulder pain over the last couple of months. It has limited my mobility some what, Well I finally mentioned it to my doctor. After I described the pain to her and completing physical exam. She diagnosed Frozen Shoulder. Pain med was given and I was referred to P.T.( Physical Therapy) It actually was a relief to know it was just not par for the course as a patient with Myasthenia. After further reading I discovered that my long stay in ICU could have contributed. There you have it mystery solved.
Definition
Frozen shoulder, also called adhesive capsulitis, causes pain and stiffness in the shoulder. Over time, the shoulder becomes very hard to move.
Frozen shoulder occurs in about 2% of the general population. It most commonly affects people between the ages of 40 and 60, and occurs in women more often than me
Cause
The causes of frozen shoulder are not fully understood. There is no clear connection to arm dominance or occupation. A few factors may put you more at risk for developing frozen shoulder.
Diabetes. Frozen shoulder occurs much more often in people with diabetes, affecting 10% to 20% of these individuals. The reason for this is not known.
Other diseases. Some additional medical problems associated with frozen shoulder include hypothyroidism, hyperthyroidism, Parkinson's disease, and cardiac disease.
Immobilization. Frozen shoulder can develop after a shoulder has been immobilized for a period of time due to surgery, a fracture, or other injury. Having patients move their shoulders soon after injury or surgery is one measure prescribed to prevent frozen shoulder.
Definition
Frozen shoulder, also called adhesive capsulitis, causes pain and stiffness in the shoulder. Over time, the shoulder becomes very hard to move.
Frozen shoulder occurs in about 2% of the general population. It most commonly affects people between the ages of 40 and 60, and occurs in women more often than me
Cause
The causes of frozen shoulder are not fully understood. There is no clear connection to arm dominance or occupation. A few factors may put you more at risk for developing frozen shoulder.
Diabetes. Frozen shoulder occurs much more often in people with diabetes, affecting 10% to 20% of these individuals. The reason for this is not known.
Other diseases. Some additional medical problems associated with frozen shoulder include hypothyroidism, hyperthyroidism, Parkinson's disease, and cardiac disease.
Immobilization. Frozen shoulder can develop after a shoulder has been immobilized for a period of time due to surgery, a fracture, or other injury. Having patients move their shoulders soon after injury or surgery is one measure prescribed to prevent frozen shoulder.
Monday, October 8, 2012
THE SMALL THINGS
To day I reflect back to my date of diagnoses. And the trauma I went through after surgery. My recovery period out of ICU.And my rehab once I returned Home. The thought that came to my mind today. I remember trying to find some form of normalcy during rehab. One of the things I did for relaxation was playing bejeweled on Facebook. I played on weekends and after work for relaxation. I attempted to do so after diagnoses. But my reflexes were slow and my hand eye coordination was not there. But a silly grin just came over my face today because I just scored 400+ in bejeweled. And to me that signals I am making it around to full circle . Some time IT IS the little things!
Wednesday, August 15, 2012
What you can we do
- Exercise is a 2 edged sword, it can lead to exhaustion if overdone, but regular gentle exercise is beneficial forthe muscles and general welbeing. Listen to your body
- Food - watch what you eat and see if anything consistently worsens the MG symptoms. Milk and milk products may do this. But if foods do not affect your symptoms, and you enjoy them, then by all means eat them, despite what some web site says.
- Eat foods rich in potassium as this may help muscle function - bananas and fruits, fish and poultry.
- Alcohol in moderation should not cause any problems, but if you feel worse dont, but never more tan a glass or two.
- Coffee among other things has a mild anticholinesterase activity like Mestanon. This could make you feel better and stronger, but could also increase some of the mestanon side effects (cramping and diarrhoea). Like most things it is trial and error with MG, if it helps and you like it have some coffee, if you feel worse stop.
- Avoid STATIN drugs - these can make the symptoms much worse
Sunday, July 22, 2012
Friday, July 20, 2012
Monday, July 16, 2012
Thursday, July 12, 2012
VOLUNTEER WORK
VOLUNTEERING AT THE KATRINA MCCLAIN YOUTH CAMP.


Considered to be one of the most decorated American athletes ever, with three Olympic medals, three World Championship medals, two Pan-Am medals, and two Goodwill Games medals, this Women’s Basketball, and Athletic Hall of Fame inductee now devotes her efforts to her non-for-profit foundation, The Katrina McClain Foundation.
“I have returned to my hometown of Charleston to promote and advocate my long-standing commitment to the youth”. The foundation addresses the needs of today’s youth by developing enrichment programs designed to build self-esteem, promote education, increase fitness and health awareness, as well as foster young leaders to be productive in the community.
Tuesday, July 3, 2012
Friday, June 29, 2012
Monday, June 25, 2012
Reality Check-Up
Since diagnosed I try very hard to simulate a life unaffected by Myasthenia. But there are times, that no matter how you look it's humbling. One of those time for me is when I have to get my blood work done. I suffer from lack of veins syndrome. And when blood work is needed it becomes a big ordeal for me and my arms. I in the last month and 1/2 have suffered through Shingles and Pneumonia. And my one arm shows a tract road map of the blood work places. The Doctor appointment went well, with a 3-month follow-up. Now that I am done with my most recent reality check I will rest. And wait for the next reality check in three months. For me it is most appropriate to call it that instead of Doctors appointment.
Thursday, June 21, 2012
LA CASH PRODUCTIONS PRESENT:
The is a platform for Christian Artist to perform and connect with like
minds. A merger of writers, entertainers, as well as musicians. All
networking to further the Kingdom of God. Come out every third Friday as
we take christian entertainment t in South Carolina to the next level.
If you are interested in showcasing your talent or making an presentation at our nest gathering.
Contact us at lacashproductions@gmail.co m
And remember "FOR WHERE TWO OR THREE ARE GATHERED...."Matt. 18-20
THIS EVENT IS FREE
If you are interested in showcasing your talent or making an presentation at our nest gathering.
Contact us at lacashproductions@gmail.co
And remember "FOR WHERE TWO OR THREE ARE GATHERED...."Matt. 18-20
THIS EVENT IS FREE
Friday, July 20, 2012
7:00pm until 9:00pm
Olde Village Community Center 4820 Jenkins Ave. North Charleston SC
Saturday, June 16, 2012
Jewelry by La Cash
Dr.Gwendolyn Todd-Houston modeling Jewelry by La Cash. Looking oh so pretty in Pink. http://www.jewelrybycash.bigcartel.com/
Sunday, June 10, 2012
Thursday, June 7, 2012
Saturday, June 2, 2012
My jewelry line provides many opportunities to meet people and get out of house. It is a form of thereby for me and helps as i learn to live with my illness.So off to my first event after fashion show.
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| Fashion & Beauty Meet and Greet at Wing Time. Sunday, June 3, 2012, 5pm until 8pm. 2810 Ashley Phosphate Rd. Ste A1. N. Charleston, SC 29418 |
Tuesday, May 29, 2012
I Have pain
Myasthenia gravis and back pain between shoulder blades
As like others like my self I was treated for a thymoma on my thymus.The location of the thymus gland and thus the thymoma is in the middle of the chest right below the lungs behind the chest bone. That is why in the Myasthenia gravis operation, the surgeon has to literally saw the chestbone apart to get to the thymoma and put the chest bone back together again. It is an open chest bone sawing operation.
That location projected to the back is exactly between the shoulder blades.
This brings us to two situations: (1) pre-surgery Myasthenia gravis; and (2) post-surgery Myasthenia gravis.
(1) In pre-surgery Myasthenia gravis, the pain is due to the thymoma. (2) In post-surgery Myasthenia gravis, the pain is a phantom pain. However, due to the surgery, the healing of the cut wound of the chest bone will tighten the chest muscles and the shoulder blade muscles.
Monday, May 28, 2012
I read a description of Myasthenia Gravis as "Rag doll Illness" from my new twitter friend @mgaireland, Because of the muscle weakness associated with the illness. I thought it was very appropriate and I have adopted it as well. My personal description was wading thru the waters of live with a lead jacket on.
But how ever you decripe it ,this is How I live with MG.
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