Showing posts with label #myastheniagravis #chronicillnes #snowflake #mg#autoimmunedisease. Show all posts
Showing posts with label #myastheniagravis #chronicillnes #snowflake #mg#autoimmunedisease. Show all posts

Thursday, May 3, 2018

Friday, March 16, 2018

Happy Birthday Original Diva!

Happy Birthday, Diva. Today is My Mothers Birthday. And I would like to celebrate all the things she is to me. My fashion Icon, among other things. I also share some of the life events. That was happening ion the day she was born. She is definitely 76 years old and amazing.





Monday, March 12, 2018

Planting Seeds

Planting your own seeds are necessary. When you realize you are not everyone's cup of tea. Waiting for others to water, nurture and feed your seed. May only delay your own Growth toward full Bloom. Until you find y9our people remember. To always fertilize your own ground. Because you are planting seeds.

Thursday, March 8, 2018

Choosing the side effects and the cure

In choosing to undergo IVIG Infusions. IVIG is Intravenous Immunoglobulin. It is harvested from the plasma of approximately a thousand or more blood donors. I also choose the Possible Side Effects. Headaches, blood pressure changes, nausea, vomiting, fever, fatigue, and chills.


Wednesday, March 7, 2018

I am Just no Ordinary Girl





I am Just no Ordinary Girl with Myasthenia Gravis. I am #MGStrong. I fly above my circumstances. With the use of my mind. Removing my self mentally from the pain and unhappiness. One way I do this is through music. As I receive my monthly IVIG treatment. I stumbled on music by Leela James. I also express my self creatively. WITH THE USE OF FASHION. NOT LETTING MY OUTSIDE TOTALY REFLECT MY INSIDE.

Wednesday, February 28, 2018

Have a little Faith in Me


Have a little Faith in Me. Is what you hear when God answers your prayers. You hear God confirming his blessing.And the test and trials that have brought so much anguish. Is now finally clear to you. It was only a matter of opening your eyes. 

Tuesday, February 27, 2018

Saying Good bye to black history month 2018



Tomorrow is the last day of Black History month 2018. I wanted to give it a proper send-off today. It has truly been a historical month. With the release of the movie "Black Panther"  I have added my own special twists to the celebration,. With added African and African -American history. Why allowing my life with Myasthenia Gravis to remain center stage

Friday, February 23, 2018

When you need a reason to continue



Sometimes life comes at you hard. And you question if all of this is worth the trouble. After posting my first video on January 29, 2017

I need to reevaluate my own reason to continue the videos

Thursday, February 22, 2018

Doing a work on the Inside



Sharing the organic tea I am using to take care of my body. In spite of the Myasthenia.  As well as " Listening to the Voice of God" Growing in Faith every Day. Appreciating the things that are truly important.  It is about Doing the Work on the Inside.



Wednesday, February 21, 2018

I am an Original Melanin Gurl



I am an original melanin gurl. Exercising my right as a woman to change. Not only my mind but my appearance. Showing appreciation to the young movers and shakers i. the beauty industry

My Black History Shoutout.

Monday, February 19, 2018

My Black Panther Shoutout



Sharing my experience seeing the movie Black Panther this weekend. More about living with Myasthenia Gravis.  A Book from my shelf. In celebration of Black History Month. Among a host of other topics.

Friday, February 16, 2018

What will be your Legacy?



Merriam-Webster defines Legacy as"1- a gift by will especially of money or other personal property. 

2- something transmitted by or received from ancestors or predecessors from the past.